| Home > 107th Congressional Bills > H.Con.Res. 31 (eh) [Engrossed in House] ...
H.Con.Res. 31 (eh) [Engrossed in House] ...
108th CONGRESS 1st Session H. CON. RES. 30 Expressing the sense of the Congress regarding scleroderma. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES February 5, 2003 Mr. Gutierrez (for himself, Mr. Radanovich, Mr. Towns, Ms. Norton, Mr. Kildee, Mr. Smith of New Jersey, Mr. Wynn, Mr. Snyder, Mr. Lynch, Mr. Hastings of Florida, Mr. Waxman, Mr. Payne, Ms. Lee, Mr. Pallone, Mr. Hinchey, Mr. Boehlert, Mr. Owens, Ms. Schakowsky, Mr. Levin, Mr. LaTourette, Mrs. Christensen, Mr. Rush, Mr. McHugh, Ms. Corrine Brown of Florida, Mr. Reyes, Mr. Skelton, Ms. Ros-Lehtinen, Mr. Lipinski, Mr. Rangel, Mr. Davis of Illinois, Mr. Costello, and Mr. Price of North Carolina) submitted the following concurrent resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ CONCURRENT RESOLUTION Expressing the sense of the Congress regarding scleroderma. Whereas scleroderma is a debilitating and potentially fatal autoimmune disease with a broad range of symptoms which may be either localized or systemic; Whereas scleroderma may attack vital internal organs, including the heart, esophagus, lungs, and kidneys, and may do so without causing any external symptoms; Whereas more than 300,000 people in the United States suffer from scleroderma; Whereas the symptoms of scleroderma include hardening and thickening of the skin, swelling, disfigurement of the hands, spasms of blood vessels causing severe discomfort in the fingers and toes, weight loss, joint pain, difficulty swallowing, extreme fatigue, and ulcerations on the fingertips which are slow to heal; Whereas people with advanced scleroderma may be unable to perform even the simplest tasks; Whereas 80 percent of the people suffering from scleroderma are women between the ages of 25 and 55; Whereas scleroderma is the 5th leading cause of death among all autoimmune diseases for women who are 65 years old or younger; Whereas the wide range of symptoms and localized and systemic variations of scleroderma make it difficult to diagnose; Whereas the average diagnosis of scleroderma is made 5 years after the onset of symptoms; Whereas the cause of scleroderma is still unknown and there is no known cure; and Whereas the estimated annual direct and indirect costs of scleroderma in the United States are $1,500,000,000: Now, therefore, be it Resolved by the House of Representatives (the Senate concurring), That it is the sense of the Congress that-- (1) private organizations and health care providers should be recognized for their efforts to promote awareness of and research on scleroderma; (2) the people of the United States, including the medical community, should make themselves aware of the symptoms of scleroderma and contribute to the fight against scleroderma; (3) the Federal Government has a responsibility to promote awareness regarding scleroderma, to adequately fund research projects regarding scleroderma, and to continue to consider ways to improve the quality of health care services provided for scleroderma patients, including making prescription medication more affordable; (4) the National Institutes of Health should continue to play a leadership role in the fight against scleroderma by-- (A) working more closely with private organizations and researchers to find a cure for scleroderma; (B) funding research projects regarding scleroderma conducted by private organizations and researchers; (C) holding a scleroderma symposium which would bring together distinguished scientists and clinicians from across the United States to determine the most important priorities in scleroderma research; (D) supporting the formation of small workgroups composed of experts from diverse but related scientific fields to study scleroderma; (E) conducting more genetic, environmental, and clinical research regarding scleroderma; (F) training more basic and clinical scientists to carry out such research; and (G) providing for better dissemination of the information learned from such research; and (5) the Centers for Disease Control and Prevention should give priority consideration to the establishment of a national epidemiological study to better track the incidence of scleroderma and to gather information about the disease that could lead to a cure. <all>
Other Popular 107th Congressional Bills Documents:
|GovRecords.org presents information on various agencies of the United States Government. Even though all information is believed to be credible and accurate, no guarantees are made on the complete accuracy of our government records archive. Care should be taken to verify the information presented by responsible parties. Please see our reference page for congressional, presidential, and judicial branch contact information. GovRecords.org values visitor privacy. Please see the privacy page for more information.|
Supreme Court Decisions
104th Congressional Documents
105th Congressional Documents
106th Congressional Documents
107th Congressional Documents
108th Congressional Documents
1994 Presidential Documents