Home > 106th Congressional Bills > H.R. 4365 (enr) To amend the Public Health Service Act with respect to children's health. [Enrolled bill] ...H.R. 4365 (enr) To amend the Public Health Service Act with respect to children's health. [Enrolled bill] ...
assisted under paragraph (1) shall use the facilities of a
single institution, or be formed from a consortium of
cooperating institutions, meeting such requirements as may be
prescribed by the Director of the Institute.
``(6) Duration of support.--Support may be provided to a
center under paragraph (1) for a period not exceeding 5 years.
Such period may be extended for one or more additional periods,
each of which may not exceed 5 years, if the operations of such
center have been reviewed by an appropriate technical and
scientific peer review group established by the Director and if
such group has recommended to the Director that such period be
extended.
``(7) Authorization of appropriations.--For the purpose of
carrying out this subsection, there are authorized to be
appropriated such sums as may be necessary for each of the
fiscal years 2001 through 2005.''.
SEC. 203. NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT;
LOAN REPAYMENT PROGRAM REGARDING RESEARCH ON FRAGILE X.
Part G of title IV of the Public Health Service Act (42 U.S.C. 288
et seq.) is amended by inserting after section 487E the following
section:
``loan repayment program regarding research on fragile x
``Sec. 487F. (a) In General.--The Secretary, in consultation with
the Director of the National Institute of Child Health and Human
Development, shall establish a program under which the Federal
Government enters into contracts with qualified health professionals
(including graduate students) who agree to conduct research regarding
fragile X in consideration of the Federal Government's agreement to
repay, for each year of such service, not more than $35,000 of the
principal and interest of the educational loans owed by such health
professionals.
``(b) Applicability of Certain Provisions.--With respect to the
National Health Service Corps Loan Repayment Program established in
subpart III of part D of title III, the provisions of such subpart
(including section 338B(g)(3)) shall, except as inconsistent with
subsection (a) of this section, apply to the program established in
such subsection in the same manner and to the same extent as such
provisions apply to the National Health Service Corps Loan Repayment
Program established in such subpart.
``(c) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2001 through 2005.''.
TITLE III--JUVENILE ARTHRITIS AND RELATED CONDITIONS
SEC. 301. NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN
DISEASES; RESEARCH ON JUVENILE ARTHRITIS AND RELATED
CONDITIONS.
Subpart 4 of part C of title IV of the Public Health Service Act
(42 U.S.C. 285d et seq.) is amended by inserting after section 442 the
following section:
``juvenile arthritis and related conditions
``Sec. 442A. (a) Expansion and Coordination of Activities.--The
Director of the Institute, in coordination with the Director of the
National Institute of Allergy and Infectious Diseases, shall expand and
intensify the programs of such Institutes with respect to research and
related activities concerning juvenile arthritis and related
conditions.
``(b) Coordination.--The Directors referred to in subsection (a)
shall jointly coordinate the programs referred to in such subsection
and consult with the Arthritis and Musculoskeletal Diseases Interagency
Coordinating Committee.
``(c) Pediatric Rheumatology.--The Secretary, acting through the
appropriate agencies of the Public Health Service, shall develop a
coordinated effort to help ensure that a national infrastructure is in
place to train and develop pediatric rheumatologists to address the
health care services requirements of children with arthritis and
related conditions.
``(d) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2001 through 2005.''.
SEC. 302. INFORMATION CLEARINGHOUSE.
Section 438(b) of the Public Health Service Act (42 U.S.C. 285d-
3(b)) is amended by inserting ``, including juvenile arthritis and
related conditions,'' after ``diseases''.
TITLE IV--REDUCING BURDEN OF DIABETES AMONG CHILDREN AND YOUTH
SEC. 401. PROGRAMS OF CENTERS FOR DISEASE CONTROL AND PREVENTION.
Part B of title III of the Public Health Service Act, as amended by
section 102 of this Act, is amended by inserting after section 317H the
following section:
``diabetes in children and youth
``Sec. 317I. (a) National Registry on Juvenile Diabetes.--The
Secretary , acting through the Director of the Centers for Disease
Control and Prevention, shall develop a system to collect data on
juvenile diabetes, including with respect to incidence and prevalence,
and shall establish a national database for such data.
``(b) Type 2 Diabetes in Youth.--The Secretary, acting through the
Director of the Centers for Disease Control and Prevention and in
consultation with the Administrator of the Health Resources and
Services Administration, shall implement a national public health
effort to address type 2 diabetes in youth, including--
``(1) enhancing surveillance systems and expanding research
to better assess the prevalence of type 2 diabetes in youth and
determine the extent to which type 2 diabetes is incorrectly
diagnosed as type 1 diabetes among children;
``(2) assisting States in establishing coordinated school
health programs and physical activity and nutrition
demonstration programs to control weight and increase physical
activity among youth; and
``(3) developing and improving laboratory methods to assist
in diagnosis, treatment, and prevention of diabetes including,
but not limited to, developing noninvasive ways to monitor
blood glucose to prevent hypoglycema and improving existing
glucometers that measure blood glucose.
``(c) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2001 through 2005.''.
SEC. 402. PROGRAMS OF NATIONAL INSTITUTES OF HEALTH.
Subpart 3 of part C of title IV of the Public Health Service Act
(42 U.S.C. 285c et seq.) is amended by inserting after section 434 the
following section:
``juvenile diabetes
``Sec. 434A. (a) Long-Term Epidemiology Studies.--
``(1) In general.--The Director of the Institute shall
conduct or support long-term epidemiology studies in which
individuals with type 1, or juvenile, diabetes are followed for
10 years or more. Such studies shall, in order to provide a
valuable resource for the purposes specified in paragraph (2),
provide for complete characterization of disease
manifestations, appropriate medical history, elucidation of
environmental factors, delineation of complications, results of
usual medical treatment and a variety of other potential
valuable (such as samples of blood).
``(2) Purposes.--The purposes referred to in paragraph (1)
with respect to type 1 diabetes are the following:
``(A) Delineation of potential environmental
triggers thought precipitating or causing type 1
diabetes.
``(B) Delineation of those clinical characteristics
or lab measures associated with complications of the
disease.
``(C) Potential study population to enter into
clinical trials for prevention and treatment, as well
as genetic studies.
``(b) Clinical Trial Infrastructure/Innovative Treatments for
Juvenile Diabetes.--The Secretary, acting through the Director of the
National Institutes of Health, shall support regional clinical centers
for the cure of juvenile diabetes and shall through such centers
provide for--
``(1) well-characterized population of children appropriate
for study;
``(2) well-trained clinical scientists able to conduct such
trials;
``(3) appropriate clinical settings able to house such
studies; and
``(4) appropriate statistical capability, data, safety and
other monitoring capacity.
``(c) Development of Vaccine.--The Secretary, acting through the
appropriate agencies of the Public Health Service, shall provide for a
national effort to develop a vaccine for type 1 diabetes. Such effort
shall provide for a combination of increased efforts in research and
development of candidate vaccines, coupled with appropriate ability to
conduct large clinical trials in children.
``(d) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2001 through 2005.''.
TITLE V--ASTHMA TREATMENT SERVICES FOR CHILDREN
SEC. 501. SHORT TITLE.
This title may be cited as the ``Children's Asthma Relief Act of
2000''.
Subtitle A--Treatment
SEC. 511. GRANTS FOR CHILDREN'S ASTHMA RELIEF.
Title III of the Public Health Service Act (42 U.S.C. 241 et seq.)
is amended by adding at the end the following part:
``PART P--ADDITIONAL PROGRAMS
``SEC. 399L. CHILDREN'S ASTHMA TREATMENT GRANTS PROGRAM.
``(a) Authority To Make Grants.--
``(1) In general.--In addition to any other payments made
under this Act or title V of the Social Security Act, the
Secretary shall award grants to eligible entities to carry out
the following purposes:
``(A) To provide access to quality medical care for
children who live in areas that have a high prevalence
of asthma and who lack access to medical care.
``(B) To provide on-site education to parents,
children, health care providers, and medical teams to
recognize the signs and symptoms of asthma, and to
train them in the use of medications to treat asthma
and prevent its exacerbations.
``(C) To decrease preventable trips to the
emergency room by making medication available to
individuals who have not previously had access to
treatment or education in the management of asthma.
``(D) To provide other services, such as smoking
cessation programs, home modification, and other direct
and support services that ameliorate conditions that
exacerbate or induce asthma.
``(2) Certain projects.--In making grants under paragraph
(1), the Secretary may make grants designed to develop and
expand the following projects:
``(A) Projects to provide comprehensive asthma
services to children in accordance with the guidelines
of the National Asthma Education and Prevention Program
(through the National Heart, Lung and Blood Institute),
including access to care and treatment for asthma in a
community-based setting;
``(B) Projects to demonstrate mobile health care
clinics that in accordance with such guidelines provide
preventive asthma care. Such projects shall be
evaluated and reports describing the findings of the
evaluations shall be submitted to the Congress.
``(C) Projects to conduct validated asthma
management education programs for patients with asthma
and their families, including patient education
regarding asthma management, family education on asthma
management, and the distribution of materials,
including displays and videos, to reinforce concepts
presented by medical teams.
``(2) Award of grants.--
``(A) Application.--
``(i) In general.--An eligible entity shall
submit an application to the Secretary for a
grant under this section in such form and
manner as the Secretary may require.
``(ii) Required information.--An
application submitted under this subparagraph
shall include a plan for the use of funds
awarded under the grant and such other
information as the Secretary may require.
``(B) Requirement.--In awarding grants under this
section, the Secretary shall give preference to
eligible entities that demonstrate that the activities
to be carried out under this section shall be in
localities within areas of known or suspected high
prevalence of childhood asthma or high asthma-related
mortality (relative to the average asthma prevalence
rates and associated mortality rates in the United
States). Acceptable data sets to demonstrate a high
prevalence of childhood asthma or high asthma-related
mortality may include data from Federal, State, or
local vital statistics, claims data under title XIX or
XXI of the Social Security Act, other public health
statistics or surveys, or other data that the
Secretary, in consultation with the Director of the
Centers for Disease Control and Prevention, deems
appropriate.
``(3) Definition of eligible entity.--For purposes of this
section, the term `eligible entity' means a State agency or
other entity receiving funds under title V of the Social
Security Act, a local community, a nonprofit children's
hospital or foundation, or a nonprofit community-based
organization.
``(b) Coordination With Other Children's Programs.--An eligible
entity shall identify in the plan submitted as part of an application
for a grant under this section how the entity will coordinate
operations and activities under the grant with--
``(1) other programs operated in the State that serve
children with asthma, including any such programs operated
under titles V, XIX, or XXI of the Social Security Act; and
``(2) one or more of the following--
``(A) the child welfare and foster care and
adoption assistance programs under parts B and E of
title IV of such Act;
``(B) the head start program established under the
Head Start Act (42 U.S.C. 9831 et seq.);
``(C) the program of assistance under the special
supplemental nutrition program for women, infants and
children (WIC) under section 17 of the Child Nutrition
Act of 1966 (42 U.S.C. 1786);
``(D) local public and private elementary or
secondary schools; or
``(E) public housing agencies, as defined in
section 3 of the United States Housing Act of 1937 (42
U.S.C. 1437a).
``(c) Evaluation.--An eligible entity that receives a grant under
this section shall submit to the Secretary an evaluation of the
operations and activities carried out under the grant that includes--
``(1) a description of the health status outcomes of
children assisted under the grant;
``(2) an assessment of the utilization of asthma-related
health care services as a result of activities carried out
under the grant;
``(3) the collection, analysis, and reporting of asthma
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