Home > 106th Congressional Bills > H.R. 4365 (enr) To amend the Public Health Service Act with respect to children's health. [Enrolled bill] ...H.R. 4365 (enr) To amend the Public Health Service Act with respect to children's health. [Enrolled bill] ...
States and its territories should have a hearing screening
within the first 3 months of life.
(3) Appropriate audiologic and medical evaluations should
be conducted by 3 months for all newborns and infants suspected
of having hearing loss to allow appropriate referral and
provisions for audiologic rehabilitation, medical and early
intervention before the age of 6 months.
(4) All newborn and infant hearing screening programs and
systems should include a component for audiologic
rehabilitation, medical and early intervention options that
ensures linkage to any new and existing state-wide systems of
intervention and rehabilitative services for newborns and
infants with hearing loss.
(5) Public policy in regard to newborn and infant hearing
screening and intervention should be based on applied research
and the recognition that newborns, infants, toddlers, and
children who are deaf or hard-of-hearing have unique language,
learning, and communication needs, and should be the result of
consultation with pertinent public and private sectors.
SEC. 703. PROGRAMS OF HEALTH RESOURCES AND SERVICES ADMINISTRATION,
CENTERS FOR DISEASE CONTROL AND PREVENTION, AND NATIONAL
INSTITUTES OF HEALTH.
Part P of title III of the Public Health Service Act, as added by
section 511 of this Act, is amended by adding at the end the following
section:
``SEC. 399M. EARLY DETECTION, DIAGNOSIS, AND TREATMENT REGARDING
HEARING LOSS IN INFANTS.
``(a) Statewide Newborn and Infant Hearing Screening, Evaluation
and Intervention Programs and Systems.--The Secretary, acting through
the Administrator of the Health Resources and Services Administration,
shall make awards of grants or cooperative agreements to develop
statewide newborn and infant hearing screening, evaluation and
intervention programs and systems for the following purposes:
``(1) To develop and monitor the efficacy of state-wide
newborn and infant hearing screening, evaluation and
intervention programs and systems. Early intervention includes
referral to schools and agencies, including community,
consumer, and parent-based agencies and organizations and other
programs mandated by part C of the Individuals with
Disabilities Education Act, which offer programs specifically
designed to meet the unique language and communication needs of
deaf and hard of hearing newborns, infants, toddlers, and
children.
``(2) To collect data on statewide newborn and infant
hearing screening, evaluation and intervention programs and
systems that can be used for applied research, program
evaluation and policy development.
``(b) Technical Assistance, Data Management, and Applied
Research.--
``(1) Centers for disease control and prevention.--The
Secretary, acting through the Director of the Centers for
Disease Control and Prevention, shall make awards of grants or
cooperative agreements to provide technical assistance to State
agencies to complement an intramural program and to conduct
applied research related to newborn and infant hearing
screening, evaluation and intervention programs and systems.
The program shall develop standardized procedures for data
management and program effectiveness and costs, such as--
``(A) to ensure quality monitoring of newborn and
infant hearing loss screening, evaluation, and
intervention programs and systems;
``(B) to provide technical assistance on data
collection and management;
``(C) to study the costs and effectiveness of
newborn and infant hearing screening, evaluation and
intervention programs and systems conducted by State-
based programs in order to answer issues of importance
to state and national policymakers;
``(D) to identify the causes and risk factors for
congenital hearing loss;
``(E) to study the effectiveness of newborn and
infant hearing screening, audiologic and medical
evaluations and intervention programs and systems by
assessing the health, intellectual and social
developmental, cognitive, and language status of these
children at school age; and
``(F) to promote the sharing of data regarding
early hearing loss with State-based birth defects and
developmental disabilities monitoring programs for the
purpose of identifying previously unknown causes of
hearing loss.
``(2) National institutes of health.--The Director of the
National Institutes of Health, acting through the Director of
the National Institute on Deafness and Other Communication
Disorders, shall for purposes of this section, continue a
program of research and development on the efficacy of new
screening techniques and technology, including clinical studies
of screening methods, studies on efficacy of intervention, and
related research.
``(c) Coordination and Collaboration.--
``(1) In general.--In carrying out programs under this
section, the Administrator of the Health Resources and Services
Administration, the Director of the Centers for Disease Control
and Prevention, and the Director of the National Institutes of
Health shall collaborate and consult with other Federal
agencies; State and local agencies, including those responsible
for early intervention services pursuant to title XIX of the
Social Security Act (Medicaid Early and Periodic Screening,
Diagnosis and Treatment Program); title XXI of the Social
Security Act (State Children's Health Insurance Program); title
V of the Social Security Act (Maternal and Child Health Block
Grant Program); and part C of the Individuals with Disabilities
Education Act; consumer groups of and that serve individuals
who are deaf and hard-of-hearing and their families;
appropriate national medical and other health and education
specialty organizations; persons who are deaf and hard-of-
hearing and their families; other qualified professional
personnel who are proficient in deaf or hard-of-hearing
children's language and who possess the specialized knowledge,
skills, and attributes needed to serve deaf and hard-of-hearing
newborns, infants, toddlers, children, and their families;
third-party payers and managed care organizations; and related
commercial industries.
``(2) Policy development.--The Administrator of the Health
Resources and Services Administration, the Director of the
Centers for Disease Control and Prevention, and the Director of
the National Institutes of Health shall coordinate and
collaborate on recommendations for policy development at the
Federal and State levels and with the private sector, including
consumer, medical and other health and education professional-
based organizations, with respect to newborn and infant hearing
screening, evaluation and intervention programs and systems.
``(3) State early detection, diagnosis, and intervention
programs and systems; data collection.--The Administrator of
the Health Resources and Services Administration and the
Director of the Centers for Disease Control and Prevention
shall coordinate and collaborate in assisting States to
establish newborn and infant hearing screening, evaluation and
intervention programs and systems under subsection (a) and to
develop a data collection system under subsection (b).
``(d) Rule of Construction.--Nothing in this section shall be
construed to preempt any State law.
``(e) Definitions.--For purposes of this section:
``(1) The term `audiologic evaluation' refers to procedures
to assess the status of the auditory system; to establish the
site of the auditory disorder; the type and degree of hearing
loss, and the potential effects of hearing loss on
communication; and to identify appropriate treatment and
referral options. Referral options should include linkage to
State coordinating agencies under part C of the Individuals
with Disabilities Education Act or other appropriate agencies,
medical evaluation, hearing aid/sensory aid assessment,
audiologic rehabilitation treatment, national and local
consumer, self-help, parent, and education organizations, and
other family-centered services.
``(2) The terms `audiologic rehabilitation' and `audiologic
intervention' refer to procedures, techniques, and technologies
to facilitate the receptive and expressive communication
abilities of a child with hearing loss.
``(3) The term `early intervention' refers to providing
appropriate services for the child with hearing loss, including
nonmedical services, and ensuring that families of the child
are provided comprehensive, consumer-oriented information about
the full range of family support, training, information
services, communication options and are given the opportunity
to consider the full range of educational and program
placements and options for their child.
``(4) The term `medical evaluation by a physician' refers
to key components including history, examination, and medical
decision making focused on symptomatic and related body systems
for the purpose of diagnosing the etiology of hearing loss and
related physical conditions, and for identifying appropriate
treatment and referral options.
``(5) The term `medical intervention' refers to the process
by which a physician provides medical diagnosis and direction
for medical and/or surgical treatment options of hearing loss
and/or related medical disorder associated with hearing loss.
``(6) The term `newborn and infant hearing screening'
refers to objective physiologic procedures to detect possible
hearing loss and to identify newborns and infants who, after
rescreening, require further audiologic and medical
evaluations.
``(f) Authorization of Appropriations.--
``(1) Statewide newborn and infant hearing screening,
evaluation and intervention programs and systems.--For the
purpose of carrying out subsection (a), there are authorized to
be appropriated to the Health Resources and Services
Administration such sums as may be necessary for each of the
fiscal years 2001 through 2005.
``(2) Technical assistance, data management, and applied
research; centers for disease control and prevention.--For the
purpose of carrying out subsection (b)(1), there are authorized
to be appropriated to the Centers for Disease Control and
Prevention such sums as may be necessary for each of the fiscal
years 2001 through 2005.
``(3) Technical assistance, data management, and applied
research; national institute on deafness and other
communication disorders.--For the purpose of carrying out
subsection (b)(2), there are authorized to be appropriated to
the National Institute on Deafness and Other Communication
Disorders such sums as may be necessary for each of the fiscal
years 2001 through 2005.''.
TITLE VIII--CHILDREN AND EPILEPSY
SEC. 801. NATIONAL PUBLIC HEALTH CAMPAIGN ON EPILEPSY; SEIZURE DISORDER
DEMONSTRATION PROJECTS IN MEDICALLY UNDERSERVED AREAS.
Subpart I of part D of title III of the Public Health Service Act
(42 U.S.C. 254b) is amended by adding at the end the following section:
``SEC. 330E. EPILEPSY; SEIZURE DISORDER.
``(a) National Public Health Campaign.--
``(1) In general.--The Secretary shall develop and
implement public health surveillance, education, research, and
intervention strategies to improve the lives of persons with
epilepsy, with a particular emphasis on children. Such projects
may be carried out by the Secretary directly and through awards
of grants or contracts to public or nonprofit private entities.
The Secretary may directly or through such awards provide
technical assistance with respect to the planning, development,
and operation of such projects.
``(2) Certain activities.--Activities under paragraph (1)
shall include--
``(A) expanding current surveillance activities
through existing monitoring systems and improving
registries that maintain data on individuals with
epilepsy, including children;
``(B) enhancing research activities on patient
management and control of epilepsy;
``(C) implementing public and professional
information and education programs regarding epilepsy,
including initiatives which promote effective
management and control of the disease through
children's programs which are targeted to parents,
schools, daycare providers, patients;
``(D) undertaking educational efforts with the
media, providers of health care, schools and others
regarding stigmas and secondary disabilities related to
epilepsy and seizures, and also its affects on youth;
``(E) utilizing and expanding partnerships with
organizations with experience addressing the health and
related needs of people with disabilities; and
``(F) other activities the Secretary deems
appropriate.
``(3) Coordination of activities.--The Secretary shall
ensure that activities under this subsection are coordinated as
appropriate with other agencies of the Public Health Service
that carry out activities regarding epilepsy and seizure.
``(b) Seizure Disorder; Demonstration Projects in Medically
Underserved Areas.--
``(1) In general.--The Secretary, acting through the
Administrator of the Health Resources and Services
Administration, may make grants to States and local governments
for the purpose of carrying out demonstration projects to
improve access to health and other services regarding seizures
to encourage early detection and treatment in children and
others residing in medically underserved areas.
``(2) Application for grant.--The Secretary may make a
grant under paragraph (1) only if the application for the grant
is submitted to the Secretary and the application is in such
form, is made in such matter, and contains such agreements,
assurances, and information as the Secretary determines to be
necessary to carry out this subsection.
``(c) Definitions.--For purposes of this section:
``(1) The term ``epilepsy'' refers to a chronic and serious
neurological condition which produces excessive electrical
discharges in the brain causing recurring seizures affecting
all life activities. The Secretary may revise the definition of
such term as the Secretary.
``(2) The term ``medically underserved'' has the meaning
applicable under section 799B(6).
``(d) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2001 through 2005.''.
TITLE IX--SAFE MOTHERHOOD; INFANT HEALTH PROMOTION
Subtitle A--Safe Motherhood Monitoring and Prevention Research
SEC. 901. SHORT TITLE.
This title may be cited as the ``Safe Motherhood Monitoring and
Prevention Research Act''.
SEC. 902. MONITORING; PREVENTION RESEARCH AND OTHER ACTIVITIES.
Part B of title III of the Public Health Service Act, as amended by
section 602 of this Act, is amended by inserting after section 317K the
following section:
``safe motherhood
``Sec. 317L. (a) Monitoring.--
``(1) Purpose.--The purpose of this subsection is to
develop monitoring systems at the local, State, and national
level to better understand the burden of maternal complications
and mortality and to decrease the disparities among population
at risk of death and complications from pregnancy.
``(2) Activities.--For the purpose described in paragraph
(1), the Secretary may carry out the following activities:
``(A) the Secretary may establish and implement a
national monitoring and surveillance program to
identify and promote the investigation of deaths and
severe complications that occur during pregnancy.
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