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106th CONGRESS
2d Session
H. R. 4365
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
May 10, 2000
Received; read twice and referred to the Committee on Health,
Education, Labor, and Pensions
_______________________________________________________________________
AN ACT
To amend the Public Health Service Act with respect to children's
health.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Children's Health Act of 2000''.
SEC. 2. TABLE OF CONTENTS.
The table of contents for this Act is as follows:
Sec. 1. Short title.
Sec. 2. Table of contents.
TITLE I--AUTISM
Subtitle A--Surveillance and Research Regarding Prevalence and Pattern
of Autism
Sec. 101. Short title.
Sec. 102. Surveillance and research programs; clearinghouse; advisory
committee.
Subtitle B--Expansion, Intensification, and Coordination of Autism
Activities of National Institutes of Health
Sec. 111. Short title.
Sec. 112. Expansion, intensification, and coordination; information and
education; interagency coordinating
committee.
TITLE II--RESEARCH AND DEVELOPMENT REGARDING
FRAGILE X
Sec. 201. Short title.
Sec. 202. National Institute of Child Health and Human Development;
research on fragile X.
Sec. 203. National Institute of Child Health and Human Development;
loan repayment program regarding research
on fragile X.
TITLE III--JUVENILE ARTHRITIS AND RELATED CONDITIONS
Sec. 301. National Institute of Arthritis and Musculoskeletal and Skin
Diseases; research on juvenile arthritis
and related conditions.
Sec. 302. Information clearinghouse.
TITLE IV--REDUCING BURDEN OF DIABETES AMONG CHILDREN AND YOUTH
Sec. 401. Programs of Centers for Disease Control and Prevention.
Sec. 402. Programs of National Institutes of Health.
TITLE V--ASTHMA TREATMENT SERVICES FOR CHILDREN
Sec. 501. Short title.
Subtitle A--Treatment Services
Sec. 511. Grants for children's asthma relief.
Sec. 512. Technical and conforming amendments.
Subtitle B--Prevention Activities
Sec. 521. Preventive health and health services block grant; systems
for reducing asthma-related illnesses
through urban cockroach management.
Subtitle C--Coordination of Federal Activities
Sec. 531. Coordination through National Institutes of Health.
Subtitle D--Compilation of Data
Sec. 541. Compilation of data by Centers for Disease Control and
Prevention.
TITLE VI--BIRTH DEFECTS PREVENTION ACTIVITIES
Subtitle A--Folic Acid Promotion
Sec. 601. Short title.
Sec. 602. Program regarding effects of folic acid in prevention of
birth defects.
Subtitle B--National Center on Birth Defects and Developmental
Disabilities
Sec. 611. National Center on Birth Defects and Developmental
Disabilities.
TITLE VII--EARLY DETECTION, DIAGNOSIS, AND TREATMENT REGARDING HEARING
LOSS IN INFANTS
Sec. 701. Short title.
Sec. 702. Purposes.
Sec. 703. Programs of Health Resources and Services Administration,
Centers for Disease Control and Prevention,
and National Institutes of Health.
TITLE VIII--CHILDREN AND EPILEPSY
Sec. 801. National public health campaign on epilepsy; seizure disorder
demonstration projects in medically
underserved areas.
TITLE IX--SAFE MOTHERHOOD; INFANT HEALTH PROMOTION
Subtitle A--Safe Motherhood Monitoring and Prevention Research
Sec. 901. Short title.
Sec. 902. Monitoring; prevention research and other activities.
Subtitle B--Pregnant Mothers and Infants Health Promotion
Sec. 911. Short title.
Sec. 912. Programs regarding prenatal and postnatal health.
TITLE X--REVISION AND EXTENSION OF CERTAIN PROGRAMS
Subtitle A--Pediatric Research Initiative
Sec. 1001. Short title.
Sec. 1002. Establishment of pediatric research initiative.
Sec. 1003. Investment in tomorrow's pediatric researchers.
Subtitle B--Other Programs
Sec. 1011. Childhood immunizations.
Sec. 1012. Screenings, referrals, and education regarding lead
poisoning.
TITLE XI--CHILDHOOD SKELETAL MALIGNANCIES
Sec. 1101. Programs of Centers for Disease Control and Prevention and
National Institutes of Health.
TITLE XII--ADOPTION AWARENESS
Subtitle A--Infant Adoption Awareness
Sec. 1201. Short title.
Sec. 1202. Grants regarding infant adoption awareness.
Subtitle B--Special Needs Adoption Awareness
Sec. 1211. Short title.
Sec. 1212. Special needs adoption programs; public awareness campaign
and other activities.
TITLE XIII--TRAUMATIC BRAIN INJURY
Sec. 1301. Short title.
Sec. 1302. Programs of Centers for Disease Control and Prevention.
Sec. 1303. Programs of National Institutes of Health.
Sec. 1304. Programs of Health Resources and Services Administration.
TITLE XIV--PREVENTION AND CONTROL OF INJURIES
Sec. 1401. Authorization of Appropriations for programs of Centers for
Disease Control and Prevention.
TITLE XV--HEALTHY START INITIATIVE
Sec. 1501. Short title.
Sec. 1502. Continuation of healthy start program.
TITLE XVI--ORAL HEALTH PROMOTION AND DISEASE PREVENTION
Sec. 1601. Oral health promotion and disease prevention.
TITLE XVII--VACCINE COMPENSATION PROGRAM
Sec. 1701. Short title.
Sec. 1702. Content of petitions.
TITLE XVIII--HEPATITIS C
Sec. 1801. Short title.
Sec. 1802. Surveillance and education regarding hepatitis C.
TITLE XIX--NIH INITIATIVE ON AUTOIMMUNE DISEASES
Sec. 1901. Short title.
Sec. 1902. Juvenile diabetes, juvenile arthritis, lupus, multiple
sclerosis, and other autoimmune-diseases;
initiative through Directior of National
Institutes of Health.
TITLE XX--GRADUATE MEDICAL EDUCATION PROGRAMS IN CHILDREN'S HOSPITALS
Sec. 2001. Extension of authorization of appropriations.
TITLE XXI--SPECIAL NEEDS OF CHILDREN REGARDING ORGAN TRANSPLANTATION
Sec. 2101. Short title.
Sec. 2102. Organ Procurement and Transplantation Network; amendments
regarding needs of children.
TITLE XXII--MISCELLANEOUS PROVISIONS
Sec. 2201. Report regarding research on rare diseases in children.
TITLE XXIII--EFFECTIVE DATE
Sec. 2301. Effective date.
TITLE I--AUTISM
Subtitle A--Surveillance and Research Regarding Prevalence and Pattern
of Autism
SEC. 101. SHORT TITLE.
This subtitle may be cited as the ``Autism Statistics,
Surveillance, Research, and Epidemiology Act of 2000 (ASSURE)''.
SEC. 102. SURVEILLANCE AND RESEARCH PROGRAMS; CLEARINGHOUSE; ADVISORY
COMMITTEE.
Part B of title III of the Public Health Service Act (42 U.S.C. 243
et seq.) is amended by inserting after section 317G the following
section:
``surveillance and research regarding autism and pervasive
developmental disorders
``Sec. 317H. (a) In General.--The Secretary , acting through the
Director of the Centers for Disease Control and Prevention, may make
awards of grants and cooperative agreements for the collection,
analysis, and reporting of data on autism and pervasive developmental
disorders. An entity may receive such an award only if the entity is a
public or nonprofit private entity ``(including health departments of
States and political subdivisions of States, and including universities
and other educational entities). In making such awards, the Secretary
may provide direct technical assistance in lieu of cash.
``(b) Centers of Excellence in Autism and Pervasive Developmental
Disorders Epidemiology.--
``(1) In general.--The Secretary, acting through the
Director of the Centers for Disease Control and Prevention,
shall (subject to the extent of amounts made available in
appropriations Acts) establish not less than three, and not
more than five, regional centers of excellence in autism and
pervasive developmental disorders epidemiology for the purpose
of collecting and analyzing information on the number,
incidence, correlates, and causes of autism and related
developmental disorders.
``(2) Recipients of awards for establishment of centers.--
Centers under paragraph (1) shall be established and operated
through the award of grants or cooperative agreements to public
or nonprofit private entities that conduct research, including
health departments of States and political subdivisions of
States, and including universities and other educational
entities.
``(3) Certain requirements.--An award for a center under
paragraph (1) may be made only if the entity involved submits
to the Secretary an application containing such agreements and
information as the Secretary may require, including an
agreement that the center involved will operate in accordance
with the following:
``(A) The center will collect, analyze, and report
autism and pervasive developmental disorders data
according to guidelines prescribed by the Director,
after consultation with relevant State and local public
health officials, private sector developmental disorder
researchers, and advocates for those with developmental
disorders;
``(B) The center will assist with the development
and coordination of State autism and pervasive
developmental disorders surveillance efforts within a
region;
``(C) The center will provide education, training,
and clinical skills improvement for health
professionals aimed at better understanding and
treatment of autism and related developmental
disorders; and
``(D) The center will identify eligible cases and
controls through its surveillance systems and conduct
research into factors which may cause autism and
related developmental disorders; each program will
develop or extend an area of special research expertise
(including, but not limited to, genetics, environmental
exposure to contaminants, immunology, and other
relevant research specialty areas).
``(c) Clearinghouse.--The Secretary, acting through the Director of
the Centers for Disease Control and Prevention, shall carry out the
following:
``(1) The Centers for Disease Control and Prevention shall
serve as the coordinating agency for autism and pervasive
developmental disorders surveillance activities through the
establishment of a clearinghouse for the collection and storage
of data generated from the monitoring programs created by this
section. The functions of such a clearinghouse shall include
facilitating the coordination of research and policy
development relating to the epidemiology of autism and other
pervasive developmental disorders.
``(2) The Secretary shall coordinate the Federal response
to requests for assistance from State health department
officials regarding potential or alleged autism or
developmental disorder clusters.
``(d) Advisory Committee.--
``(1) In general.--The Secretary shall establish an
Advisory Committee for Autism and Pervasive developmental
disorders Epidemiology Research (in this section referred to as
the `Committee'). The Committee shall provide advice and
recommendations to the Director of the Centers for Disease
Control and Prevention on--
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