Home > 106th Congressional Bills > S. 1880 (is) To amend the Public Health Service Act to improve the health of minority individuals. [Introduced in Senate] ...

S. 1880 (is) To amend the Public Health Service Act to improve the health of minority individuals. [Introduced in Senate] ...


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106th CONGRESS
  2d Session
                                S. 1880

_______________________________________________________________________

                                 AN ACT


 
    To amend the Public Health Service Act to improve the health of 
                         minority individuals.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE; TABLE OF CONTENTS.

    (a) Short Title.--This Act may be cited as the ``Minority Health 
and Health Disparities Research and Education Act of 2000''.
    (b) Table of Contents.--The table of contents of this Act is as 
follows:

Sec. 1. Short title; table of contents.
Sec. 2. Findings.
  TITLE I--IMPROVING MINORITY HEALTH AND REDUCING HEALTH DISPARITIES 
THROUGH NATIONAL INSTITUTES OF HEALTH; ESTABLISHMENT OF NATIONAL CENTER

Sec. 101. Establishment of National Center on Minority Health and 
                            Health Disparities.
Sec. 102. Centers of excellence for research education and training.
Sec. 103. Extramural loan repayment program for minority health 
                            disparities research.
Sec. 104. General provisions regarding the Center.
Sec. 105. Report regarding resources of National Institutes of Health 
                            dedicated to minority and other health 
                            disparities research.
TITLE II--HEALTH DISPARITIES RESEARCH BY AGENCY FOR HEALTHCARE RESEARCH 
                              AND QUALITY

Sec. 201. Health disparities research by Agency for Healthcare Research 
                            and Quality.
        TITLE III--DATA COLLECTION RELATING TO RACE OR ETHNICITY

Sec. 301. Study and report by National Academy of Sciences.
                 TITLE IV--HEALTH PROFESSIONS EDUCATION

Sec. 401. Health professions education in health disparities.
Sec. 402. National conference on health professions education and 
                            health disparities.
Sec. 403. Advisory responsibilities in health professions education in 
                            health disparities and cultural competency.
 TITLE V--PUBLIC AWARENESS AND DISSEMINATION OF INFORMATION ON HEALTH 
                              DISPARITIES

Sec. 501. Public awareness and information dissemination.
                   TITLE VI--MISCELLANEOUS PROVISIONS

Sec. 601. Departmental definition regarding minority individuals.
Sec. 602. Conforming provision regarding definitions.
Sec. 603. Effective date.

SEC. 2. FINDINGS.

    The Congress finds as follows:
            (1) Despite notable progress in the overall health of the 
        Nation, there are continuing disparities in the burden of 
        illness and death experienced by African Americans, Hispanics, 
        Native Americans, Alaska Natives, and Asian Pacific Islanders, 
        compared to the United States population as a whole.
            (2) The largest numbers of the medically underserved are 
        white individuals, and many of them have the same health care 
        access problems as do members of minority groups. Nearly 
        20,000,000 white individuals live below the poverty line with 
        many living in non-metropolitan, rural areas such as 
        Appalachia, where the high percentage of counties designated as 
        health professional shortage areas (47 percent) and the high 
        rate of poverty contribute to disparity outcomes. However, 
        there is a higher proportion of racial and ethnic minorities in 
        the United States represented among the medically underserved.
            (3) There is a national need for minority scientists in the 
        fields of biomedical, clinical, behavioral, and health services 
        research. Ninety percent of minority physicians educated at 
        Historically Black Medical Colleges live and serve in minority 
        communities.
            (4) Demographic trends inspire concern about the Nation's 
        ability to meet its future scientific, technological and 
        engineering workforce needs. Historically, non-Hispanic white 
        males have made up the majority of the United States 
        scientific, technological, and engineering workers.
            (5) The Hispanic and Black population will increase 
        significantly in the next 50 years. The scientific, 
        technological, and engineering workforce may decrease if 
        participation by underepresented minorities remains the same.
            (6) Increasing rates of Black and Hispanic workers can help 
        ensure strong scientific, technological, and engineering 
        workforce.
            (7) Individuals such as underepresented minorities and 
        women in the scientific, technological, and engineering 
        workforce enable society to address its diverse needs.
            (8) If there had not been a substantial increase in the 
        number of science and engineering degrees awarded to women and 
        underepresented minorities over the past few decades, the 
        United States would be facing even greater shortages in 
        scientific, technological, and engineering workers.
            (9) In order to effectively promote a diverse and strong 
        21st Century scientific, technological, and engineering 
        workforce, Federal agencies should expand or add programs that 
        effectively overcome barriers such as educational transition 
        from one level to the next and student requirements for 
        financial resources.
            (10) Federal agencies should work in concert with the 
        private nonprofit sector to emphasize the recruitment and 
        retention of qualified individuals from ethnic and gender 
        groups that are currently underrepresented in the scientific, 
        technological, and engineering workforce.
            (11) Behavioral and social sciences research has increased 
        awareness and understanding of factors associated with health 
        care utilization and access, patient attitudes toward health 
        services, and risk and protective behaviors that affect health 
        and illness. These factors have the potential to then be 
        modified to help close the health disparities gap among ethnic 
        minority populations. In addition, there is a shortage of 
        minority behavioral science researchers and behavioral health 
        care professionals. According to the National Science 
        Foundation, only 15.5 percent of behavioral research-oriented 
        psychology doctorate degrees were awarded to minority students 
        in 1997. In addition, only 17.9 percent of practice-oriented 
        psychology doctorate degrees were awarded to ethnic minorities.

  TITLE I--IMPROVING MINORITY HEALTH AND REDUCING HEALTH DISPARITIES 
THROUGH NATIONAL INSTITUTES OF HEALTH; ESTABLISHMENT OF NATIONAL CENTER

SEC. 101. ESTABLISHMENT OF NATIONAL CENTER ON MINORITY HEALTH AND 
              HEALTH DISPARITIES.

    (a) In General.--Part E of title IV of the Public Health Service 
Act (42 U.S.C. 287 et seq.) is amended by adding at the end the 
following subpart:

 ``Subpart 6--National Center on Minority Health and Health Disparities

``SEC. 485E. PURPOSE OF CENTER.

    ``(a) In General.--The general purpose of the National Center on 
Minority Health and Health Disparities (in this subpart referred to as 
the `Center') is the conduct and support of research, training, 
dissemination of information, and other programs with respect to 
minority health conditions and other populations with health 
disparities.
    ``(b) Priorities.--The Director of the Center shall in expending 
amounts appropriated under this subpart give priority to conducting and 
supporting minority health disparities research.
    ``(c) Minority Health Disparities Research.--For purposes of this 
subpart:
            ``(1) The term `minority health disparities research' means 
        basic, clinical, and behavioral research on minority health 
        conditions (as defined in paragraph (2)), including research to 
        prevent, diagnose, and treat such conditions.
            ``(2) The term `minority health conditions', with respect 
        to individuals who are members of minority groups, means all 
        diseases, disorders, and conditions (including with respect to 
        mental health and substance abuse)--
                    ``(A) unique to, more serious, or more prevalent in 
                such individuals;
                    ``(B) for which the factors of medical risk or 
                types of medical intervention may be different for such 
                individuals, or for which it is unknown whether such 
                factors or types are different for such individuals; or
                    ``(C) with respect to which there has been 
                insufficient research involving such individuals as 
                subjects or insufficient data on such individuals.
            ``(3) The term `minority group' has the meaning given the 
        term `racial and ethnic minority group' in section 1707.
            ``(4) The terms `minority' and `minorities' refer to 
        individuals from a minority group.
    ``(d) Health Disparity Populations.--For purposes of this subpart:
            ``(1) A population is a health disparity population if, as 
        determined by the Director of the Center after consultation 
        with the Director of the Agency for Healthcare Research and 
        Quality, there is a significant disparity in the overall rate 
        of disease incidence, prevalence, morbidity, mortality, or 
        survival rates in the population as compared to the health 
        status of the general population.
            ``(2) The Director shall give priority consideration to 
        determining whether minority groups qualify as health disparity 
        populations under paragraph (1).
            ``(3) The term `health disparities research' means basic, 
        clinical, and behavioral research on health disparity 
        populations (including individual members and communities of 
        such populations) that relates to health disparities as defined 
        under paragraph (1), including the causes of such disparities 
        and methods to prevent, diagnose, and treat such disparities.
    ``(e) Coordination of Activities.--The Director of the Center shall 
act as the primary Federal official with responsibility for 
coordinating all minority health disparities research and other health 
disparities research conducted or supported by the National Institutes 
of Health, and--
            ``(1) shall represent the health disparities research 
        program of the National Institutes of Health, including the 
        minority health disparities research program, at all relevant 
        Executive branch task forces, committees and planning 
        activities; and
            ``(2) shall maintain communications with all relevant 
        Public Health Service agencies, including the Indian Health 
        Service, and various other departments of the Federal 
        Government to ensure the timely transmission of information 
        concerning advances in minority health disparities research and 
        other health disparities research between these various 
        agencies for dissemination to affected communities and health 
        care providers.
    ``(f) Collaborative Comprehensive Plan and Budget.--
            ``(1) In general.--Subject to the provisions of this 
        section and other applicable law, the Director of NIH, the 
        Director of the Center, and the directors of the other agencies 
        of the National Institutes of Health in collaboration (and in 
        consultation with the advisory council for the Center) shall--
                    ``(A) establish a comprehensive plan and budget for 
                the conduct and support of all minority health 
                disparities research and other health disparities 
                research activities of the agencies of the National 
                Institutes of Health (which plan and budget shall be 
                first established under this subsection not later than 
                12 months after the date of the enactment of this 
                subpart);
                    ``(B) ensure that the plan and budget establish 
                priorities among the health disparities research 
                activities that such agencies are authorized to carry 
                out;
                    ``(C) ensure that the plan and budget establish 
                objectives regarding such activities, describes the 
                means for achieving the objectives, and designates the 
                date by which the objectives are expected to be 
                achieved;
                    ``(D) ensure that, with respect to amounts 
                appropriated for activities of the Center, the plan and 
                budget give priority in the expenditure of funds to 
                conducting and supporting minority health disparities 
                research;
                    ``(E) ensure that all amounts appropriated for such 
                activities are expended in accordance with the plan and 
                budget;
                    ``(F) review the plan and budget not less than 
                annually, and revise the plan and budget as 
                appropriate;
                    ``(G) ensure that the plan and budget serve as a 
                broad, binding statement of policies regarding minority 
                health disparities research and other health 
                disparities research activities of the agencies, but do 
                not remove the responsibility of the heads of the 
                agencies for the approval of specific programs or 
                projects, or for other details of the daily 
                administration of such activities, in accordance with 
                the plan and budget; and
                    ``(H) promote coordination and collaboration among 
                the agencies conducting or supporting minority health 
                or other health disparities research.
            ``(2) Certain components of plan and budget.--With respect 
        to health disparities research activities of the agencies of 
        the National Institutes of Health, the Director of the Center 
        shall ensure that the plan and budget under paragraph (1) 
        provide for--
                    ``(A) basic research and applied research, 
                including research and development with respect to 
                products;
                    ``(B) research that is conducted by the agencies;
                    ``(C) research that is supported by the agencies;
                    ``(D) proposals developed pursuant to solicitations 
                by the agencies and for proposals developed 
                independently of such solicitations; and
                    ``(E) behavioral research and social sciences 
                research, which may include cultural and linguistic 
                research in each of the agencies.
            ``(3) Minority health disparities research.--The plan and 
        budget under paragraph (1) shall include a separate statement 
        of the plan and budget for minority health disparities 

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