Home > 106th Congressional Bills > S. 2742 (pcs) To amend the Internal Revenue Code of 1986 to increase disclosure for certain political organizations exempt from tax under section 527 and section 501(c), and for other purposes. [Placed on Calendar Senate] ...S. 2742 (pcs) To amend the Internal Revenue Code of 1986 to increase disclosure for certain political organizations exempt from tax under section 527 and section 501(c), and for other purposes. [Placed on Calendar Senate] ...
108th CONGRESS 2d Session S. 2741 To amend the Public Health Service Act to reauthorize and extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes. _______________________________________________________________________ IN THE SENATE OF THE UNITED STATES July 22, 2004 Mr. Daschle introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions _______________________________________________________________________ A BILL To amend the Public Health Service Act to reauthorize and extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes. Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, SECTION 1. SHORT TITLE. This Act may be cited as the ``Advancing FASD Research, Prevention, and Services Act''. SEC. 2. FINDINGS. Congress makes the following findings: (1) Fetal Alcohol Spectrum Disorders are the spectrum of serious, life-long disorders caused by prenatal exposure to alcohol, which include Fetal Alcohol Syndrome, Alcohol-Related Neurodevelopmental Disorder, and Alcohol-Related Birth Defects. (2) In the decades that have passed since Fetal Alcohol Syndrome was first recognized in the United States, this fully preventable condition has continued to affect American children and families. (3) Prenatal alcohol exposure can cause brain damage that produces cognitive and behavioral impairments. Prenatal alcohol exposure can cause mental retardation or low IQ and difficulties with learning, memory, attention, and problem- solving. It can also create problems with mental health and social interactions. (4) Prenatal alcohol exposure also can cause growth retardation, birth defects involving the heart, kidney, vision and hearing, and a characteristic pattern of facial abnormalities. (5) About 13 percent of women report using alcohol during pregnancy even though there is no known safe level of alcohol consumption during pregnancy. (6) Estimates of individuals with Fetal Alcohol Syndrome vary but are estimated to be between 0.5 and 2.0 per 1,000 births. The prevalence rate is considerably higher for all Fetal Alcohol Spectrum Disorders: about 10 out of 1,000 births (1 percent of births). (7) Prevalence of Fetal Alcohol Spectrum Disorders can be even higher in certain populations, such as Native Americans, and in certain areas, such as those characterized by low socioeconomic status. (8) Fetal Alcohol Spectrum Disorders pose extraordinary financial costs to the Nation, including the cost of specialized health care, education, foster care, incarceration, job training, and general support services for individuals affected by Fetal Alcohol Spectrum Disorders. (9) Lifetime health costs for an individual with Fetal Alcohol Syndrome average $860,000, and can run as high as $4,200,000. The direct and indirect economic costs of Fetal Alcohol Syndrome in the United States were $5,400,000,000 in 2003. Total economic costs would be even higher for all Fetal Alcohol Spectrum Disorders. (10) There is a great need for research, surveillance, prevention, treatment, and support services for individuals with Fetal Alcohol Spectrum Disorders and their families. SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS. Section 399H of the Public Health Service Act (48 U.S.C. 280f) is amended-- (1) by striking the section heading and inserting the following: ``SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.''; (2) by redesignating subsections (a) through (d) as subsections (h) through (k), respectively; (3) by inserting after the section heading, the following: ``(a) Research on FAS and Related Disorders.-- ``(1) In general.--The Secretary, acting through the Director of the National Institutes of Health and in coordination with the Interagency Coordinating Committee on Fetal Alcohol Syndrome, shall-- ``(A) establish a research agenda for Fetal Alcohol Spectrum Disorders; and ``(B) award grants, contracts, or cooperative agreements to public or private nonprofit entities to pay all or part of carrying out research under such agenda. ``(2) Types of research.--In carrying out paragraph (1), the Secretary, acting through the Director of the National Institute of Alcohol Abuse and Alcoholism, shall conduct national and international research in coordination with other Federal agencies that includes-- ``(A) the identification of the mechanisms that produce the cognitive and behavioral problems associated with fetal alcohol exposure; ``(B) the development of a neurocognitive phenotype for Fetal Alcohol Syndrome and Alcohol-Related Neurodevelopmental Disorder; ``(C) the identification of biological markers that can be used to indicate fetal alcohol exposure; ``(D) the identification of fetal and maternal risk factors that increase susceptibility to Fetal Alcohol Spectrum Disorders; ``(E) the investigation of behavioral and pharmacotherapies for alcohol-dependent women to determine new approaches for sustaining recovery; ``(F) the development of scientific-based therapeutic interventions for individuals with Fetal Alcohol Spectrum Disorders; ``(G) the development of screening instruments to identify women who consume alcohol during pregnancy and the development of standards for measuring, reporting, and analyzing alcohol consumption patterns in pregnant women; and ``(H) other research that the Director determines to be appropriate. ``(3) Study.--The Secretary, acting through the Director of the National Institute of Mental Health, shall-- ``(A) conduct a study on the behavioral disorders that may be associated with prenatal alcohol exposure; ``(B) not later than 1 year after the date of enactment of the Advancing FASD Research, Prevention, and Services Act, submit to Congress a report on the appropriateness of characterizing Fetal Alcohol Spectrum Disorders and their secondary behavioral disorders as mental health disorders; and ``(C) conduct additional research on the epidemiology of behavior disorders associated with Fetal Alcohol Spectrum Disorders in collaboration with the Centers for Disease Control and Prevention. ``(4) Authorization of appropriations.--There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2005 through 2009. ``(b) Surveillance, Identification, and Prevention Activities.-- ``(1) In general.--The Secretary, acting through the Director of the National Center on Birth Defects and Developmental Disabilities, shall facilitate surveillance, identification, and prevention of Fetal Alcohol Spectrum Disorders as provided for in this subsection. ``(2) Surveillance, identification, and prevention.--In carrying out this subsection, the Secretary shall-- ``(A) develop and implement a uniform surveillance case definition for Fetal Alcohol Syndrome and a uniform surveillance case definition for Alcohol Related Neurodevelopmental Disorder; ``(B) develop a comprehensive screening process for Fetal Alcohol Spectrum Disorders that covers different age, race, and ethnic groups and is based on the uniform surveillance case definitions developed under subparagraph (A); ``(C) disseminate and provide the necessary training and support for the screening process developed under subparagraph (B) to-- ``(i) hospitals, community health centers, outpatient programs, and other appropriate health care providers; ``(ii) incarceration and detainment facilities; ``(iii) primary and secondary schools; ``(iv) social work and child welfare offices; ``(v) foster care providers and adoption agencies; ``(vi) State offices and others providing services to individuals with disabilities; and ``(vii) other entities that the Secretary determines to be appropriate; ``(D) conduct activities related to risk factor surveillance including the annual monitoring and reporting of alcohol consumption among pregnant women and women of child bearing age; and ``(E) conduct applied public health prevention research and implement strategies for reducing alcohol- exposed pregnancies in women at high risk for alcohol- exposed pregnancies. ``(3) Authorization of appropriation.--There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for each of fiscal years 2005 through 2009. ``(c) Building State FASD Systems.-- ``(1) In general.--The Secretary, acting through the Administrator of the Substance Abuse and Mental Health Services Administration, shall award grants, contracts, or cooperative agreements to States for the purpose of establishing or expanding statewide programs of surveillance, prevention, and treatment of individuals with Fetal Alcohol Spectrum Disorders. ``(2) Eligibility.--To be eligible to receive a grant, contract, or cooperative agreement under paragraph (1) a State shall-- ``(A) prepare and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may reasonably require; ``(B) develop and implement a statewide strategic plan for preventing and treating Fetal Alcohol Spectrum Disorders; ``(C) consult with public and private non-profit entities with relevant expertise on Fetal Alcohol Spectrum Disorders within the State, including-- ``(i) parent-led groups and other organizations that support and advocate for individuals with Fetal Alcohol Spectrum Disorders; and ``(ii) Indian tribes and tribal organizations; and ``(D) designate an individual to serve as the coordinator of the State's Fetal Alcohol Spectrum Disorders program. ``(3) Strategic plan.--The statewide strategic plan prepared under paragraph (2)(B) shall include-- ``(A) the identification of existing State programs and systems that could be used to identify and treat individuals with Fetal Alcohol Spectrum Disorders and prevent alcohol consumption during pregnancy, such as-- ``(i) programs for the developmentally disabled, the mentally ill, and individuals with alcohol dependency; ``(ii) primary and secondary educational systems; ``(iii) judicial systems for juveniles and adults; ``(iv) child welfare programs and social service programs; and ``(v) other programs or systems the State determines to be appropriate; ``(B) the identification of any barriers for individuals with Fetal Alcohol Spectrum Disorders or women at risk for alcohol consumption during pregnancy to access the programs identified under subparagraph (A); and ``(C) proposals to eliminate barriers to prevention and treatment programs and coordinate the activities of such programs. ``(4) Use of funds.--Amounts received under a grant, contract, or cooperative agreement under paragraph (1) shall be used for one or more of the following activities: ``(A) Establishing a statewide surveillance system. ``(B) Collecting, analyzing and interpreting data. ``(C) Establishing a diagnostic center. ``(D) Developing, implementing, and evaluating population-based and targeted prevention programs for Fetal Alcohol Spectrum Disorders, including public awareness campaigns. ``(E) Referring individuals with Fetal Alcohol Spectrum Disorders to appropriate support services. ``(F) Developing and sharing best practices for the prevention, identification, and treatment of Fetal Alcohol Spectrum Disorders. ``(G) Providing training to health care providers on the prevention, identification, and treatment of Fetal Alcohol Spectrum Disorders. ``(H) Disseminating information about Fetal Alcohol Spectrum Disorders and the availability of support services to families of individuals with Fetal Alcohol Spectrum Disorders. ``(I) Other activities determined appropriate by the Secretary. ``(5) Multi-state programs.--The Secretary shall permit the formation of multi-State Fetal Alcohol Spectrum Disorders programs under this subsection. ``(6) Other contracts and agreements.--A State may carry out activities under paragraph (4) through contacts or cooperative agreements with public and private non-profit entities with a demonstrated expertise in Fetal Alcohol Spectrum Disorders. ``(7) Authorization of appropriations.--There are authorized to be appropriated to carry out this subsection, such sums as may be necessary for fiscal years 2005 through 2009. ``(d) Promoting Community Partnerships.-- ``(1) In general.--The Secretary shall award grants, contracts, or cooperative agreements to eligible entities to enable such entities to establish, enhance, or improve Other Popular 106th Congressional Bills Documents:
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