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108th CONGRESS
1st Session
S. 286
To revise and extend the Birth Defects Prevention Act of 1998.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
February 4, 2003
Mr. Bond (for himself, Mr. Dodd, Mr. Frist, and Mr. Kennedy) introduced
the following bill; which was read twice and referred to the Committee
on Health, Education, Labor, and Pensions
_______________________________________________________________________
A BILL
To revise and extend the Birth Defects Prevention Act of 1998.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Birth Defects and Developmental
Disabilities Prevention Act of 2003''.
SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL
DISABILITIES.
Section 317C of the Public Health Service Act (42 U.S.C. 247b-4) is
amended--
(1) in subsection (a)(2)--
(A) in subparagraph (A)--
(i) by striking ``and developmental
disabilities'' and inserting ``, developmental
disabilities, and disabilities and health'';
and
(ii) by striking ``subsection (d)(2)'' and
inserting ``subsection (c)(2)'';
(B) in subparagraph (B), by striking ``and'' at the
end;
(C) in subparagraph (C), by striking the period and
inserting a semicolon; and
(D) by adding at the end the following:
``(D) to conduct research on and to promote the
prevention of such defects and disabilities, and
secondary health conditions among individuals with
disabilities; and
``(E) to support a National Spina Bifida Program to
prevent and reduce suffering from the Nation's most
common permanently disabling birth defect.'';
(2) by striking subsection (b);
(3) in subsection (d)--
(A) by striking paragraph (1) and inserting the
following:
``(1) contains information regarding the incidence and
prevalence of birth defects, developmental disabilities, and
the health status of individuals with disabilities and the
extent to which these conditions have contributed to the
incidence and prevalence of infant mortality and affected
quality of life;'';
(B) in paragraph (3), by inserting ``,
developmental disabilities, and secondary health
conditions among individuals with disabilities'' after
``defects'';
(C) in paragraph (4), by striking ``and'' at the
end;
(D) by redesignating paragraph (5) as paragraph
(7); and
(E) by inserting after paragraph (4) the following:
``(5) contains information on the incidence and prevalence
of individuals living with birth defects and disabilities or
developmental disabilities, information on the health status of
individuals with disabilities, information on any health
disparities experienced by such individuals, and
recommendations for improving the health and wellness and
quality of life of such individuals;
``(6) contains a summary of recommendations from all birth
defects research conferences sponsored by the Centers for
Disease Control and Prevention, including conferences related
to spina bifida; and'';
(4) in subsection (e)--
(A) by inserting ``, including section 444 of the
General Education Provisions Act,'' after ``privacy of
information''; and
(B) by inserting before the period the following:
``, except that the Centers for Disease Control and
Prevention shall have access to information under
section 444(b)(1)(F) of such Act solely for purposes of
carrying out subsection (a)(2) of this section and
shall otherwise comply with all other requirements of
such section 444'';
(5) by redesignating subsections (c), (d), and (e) as
subsections (b), (c), and (d), respectively;
(6) by inserting after subsection (d) (as so redesignated),
the following:
``(e) Advisory Committee.--Notwithstanding any other provision of
law, the members of the advisory committee appointed by the Director of
the National Center for Environmental Health that have expertise in
birth defects, developmental disabilities, and disabilities and health
shall be transferred to and shall advise the National Center on Birth
Defects and Developmental Disabilities effective on the date of
enactment of the Birth Defects and Developmental Disabilities
Prevention Act of 2003.''; and
(7) in subsection (f), by striking ``$30,000,000'' and all
that follows and inserting ``such sums as may be necessary for
each of fiscal years 2003 through 2007.''.
SEC. 3. TECHNICAL CORRECTIONS FOR STATE COUNCILS ON DEVELOPMENTAL
DISABILITIES.
Section 122(a) of the Developmental Disabilities Assistance and
Bill of Rights Act of 2000 (42 U.S.C. 15022(a)) is amended--
(1) in paragraph (3)(A)(ii), by inserting before the period
the following: ``, the amount received by the State for the
previous year, or the amount of Federal appropriations received
in fiscal year 2000, 2001, or 2002, whichever is greater''; and
(2) in paragraph (4)(A)(ii), by inserting before the period
the following: ``, the amount received by the State for the
previous year, or the amount of Federal appropriations received
in fiscal year 2000, 2001, or 2002, whichever is greater''.
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